30 Things About My Invisible Illness You May Not Know
1. The illness I live with is: Atypical M.S., Fibromyalgia, Neurally Mediated Hypotension, Chronic Fatigue Immune Dysfunction Syndrome, PTSD, Adrenal Fatigue, PCOS, Neuropathy
2. I was diagnosed with it in the year: 1995 (PCOS I was diagnosed in 1966)
3. But I had symptoms since: 1994
4. The biggest adjustment I’ve had to make is: Not working and not being around people every day
5. Most people assume: I'm just fat and lazy
6. The hardest part about mornings are: severe migraines and chronic pain. Just walking can be excruciating
7. My favorite medical TV show is: You Are What You Eat
8. A gadget I couldn’t live without is: Cellphone
9. The hardest part about nights are: Falling Asleep and Staying Asleep
10. Each day I take 11 pills & vitamins. (No comments, please)
11. Regarding alternative treatments I: tried them all - some worked some didn't
12. If I had to choose between an invisible illness or visible I would choose: invisible
13. Regarding working and career: miss them both... hard to remember what normal for me was
14. People would be surprised to know: how profound my pain is 24/7
15. The hardest thing to accept about my new reality has been: not working
16. Something I never thought I could do with my illness that I did was: have children
17. The commercials about my illness: tick me off. I can not take Lyrica or Cymbalta and they are advertised as if they are CURES with "working people" taking them
18. Something I really miss doing since I was diagnosed is: walking around Manhattan
19. It was really hard to have to give up: working. I enjoyed it
20. A new hobby I have taken up since my diagnosis is: cross-stitching
21. If I could have one day of feeling normal again I would: go play with my children
22. My illness has taught me: Never Judge or Value Someone just for the Way They Look. Ever.
23. Want to know a secret? One thing people say that gets under my skin is: But you look fine!
24. But I love it when people: Invite me places or take me out somewhere
25. My favorite motto, scripture, quote that gets me through tough times is: Success in this Life is simply Survival
26. When someone is diagnosed I’d like to tell them: I'm sorry
27. Something that has surprised me about living with an illness is: I'm still alive
28. The nicest thing someone did for me when I wasn’t feeling well was: take my kids out for the day so I could have a quiet day in bed
29. I’m involved with Invisible Illness Week because: it's vital people understand
30. The fact that you read this list makes me feel: Validated
2. I was diagnosed with it in the year: 1995 (PCOS I was diagnosed in 1966)
3. But I had symptoms since: 1994
4. The biggest adjustment I’ve had to make is: Not working and not being around people every day
5. Most people assume: I'm just fat and lazy
6. The hardest part about mornings are: severe migraines and chronic pain. Just walking can be excruciating
7. My favorite medical TV show is: You Are What You Eat
8. A gadget I couldn’t live without is: Cellphone
9. The hardest part about nights are: Falling Asleep and Staying Asleep
10. Each day I take 11 pills & vitamins. (No comments, please)
11. Regarding alternative treatments I: tried them all - some worked some didn't
12. If I had to choose between an invisible illness or visible I would choose: invisible
13. Regarding working and career: miss them both... hard to remember what normal for me was
14. People would be surprised to know: how profound my pain is 24/7
15. The hardest thing to accept about my new reality has been: not working
16. Something I never thought I could do with my illness that I did was: have children
17. The commercials about my illness: tick me off. I can not take Lyrica or Cymbalta and they are advertised as if they are CURES with "working people" taking them
18. Something I really miss doing since I was diagnosed is: walking around Manhattan
19. It was really hard to have to give up: working. I enjoyed it
20. A new hobby I have taken up since my diagnosis is: cross-stitching
21. If I could have one day of feeling normal again I would: go play with my children
22. My illness has taught me: Never Judge or Value Someone just for the Way They Look. Ever.
23. Want to know a secret? One thing people say that gets under my skin is: But you look fine!
24. But I love it when people: Invite me places or take me out somewhere
25. My favorite motto, scripture, quote that gets me through tough times is: Success in this Life is simply Survival
26. When someone is diagnosed I’d like to tell them: I'm sorry
27. Something that has surprised me about living with an illness is: I'm still alive
28. The nicest thing someone did for me when I wasn’t feeling well was: take my kids out for the day so I could have a quiet day in bed
29. I’m involved with Invisible Illness Week because: it's vital people understand
30. The fact that you read this list makes me feel: Validated
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